Gone is my song...

Ever have a song that seems to push you through tough times? I do... well did. It seems I no longer have the need for the song anymore. Just listened to it and had no more positive response to it. Guess it's just a reminder of the bad now. Or better yet, a realization that I am getting better. Just gotta let it go.....


I AM GETTING BETTER!!! (that felt good...)

Thyrogen shortage

So after tonnes of digging, I knew I would find something in writing about this shortage. There is nothing to be found on either Genzymes website nor ton the Thyrogen website. I as a patient requiringthis drug find it somewhat shady that this info has to be a dirty little rumour floating around. So you don't know anything for sure until you go to your pharmacy to fill your script only to be told some genaric info about it not being available. Then what? Treatment is rescheduled? Cancelled?

So I finally got my hands on the info, the letter is addressed to healthcare professionals and was dated in Nov 2010. Causually mentions a the delay will be for a "short period" and advises Dr's to "consider this when scheduling patients".

I spoke with a local Thyrogen rep, who told me I will not be able to fill my script until AFTER May when shipments resume. She could not tell me the reson for the shortage. Her carefully scripted answer let me with more questions than answers.

Here is the letter:

What's your take on the issue?

***************************************************************************

Edited on Feb 15 2011 to add this recently found letter with a slight bit more info. Thanks to Thyroid Cancer Canada for posting it

Before and After cancer photos

Just thought I would share a pic of me before my diagnosis:

Me before cancer

Me a couple of weeks ago

Raising Funds and Awareness

Because of my currently ongoing battle with cancer, one of my passions now is helping out where I can to raise funds and awareness for cancer and cancer research. Without our help a cure will never be found.

One of the ways I got involved this year was by teaming up with an organization called Road 2 Recovery. Road2Recovery is an annual event that supports cancer and cancer research. I attended their big fundraising gala and was photographed for their yearly calendar. The calendars are $20 each! What a steal eh?! They can bepurchased from me directly or here:

http://www.road2recovery.net/calendar.html

Wanna see? I am in pink pictured with one of my dear friends. I have since cut my hair and coloured it so I look quite a bit different but rest assured that is me and I would LOVE to be your miss January! lmao

My Cancer

So at my last BIG appt, I went in expecting the worst news, because that's usually what I get. Instead my Dr. told me she had GOOD NEWS! She said the cancer is almost gone. The levels are so low, in fact, that they were almost undetectable. I wanted to cry.

What that means for me is that if all goes as plans I will need:

*one more time suffering one the Low Iodine Diet.
*Two more injections of Thyrogen
*One more dose of RAI
*another Whole Body Scan

and then I'll have more info, hopefully it will result in my first ever CLEAN SCAN!

I need it soooo badly. I need to kick this cancer's ass and get past it.